Sickle Cell New treatments

New Treatments and Therapies

  1. Crizanlizumab (Adakveo) Crizanlizumab is a newer medication approved for the treatment of sickle cell disease. It works by preventing the sickle-shaped red blood cells from sticking together and blocking blood flow, which reduces the frequency of pain crises.
    • How it works: Crizanlizumab targets a molecule involved in the adhesion of sickled cells to the blood vessel walls, reducing the chance of painful blockages and crises.
    • Benefits: Studies have shown that crizanlizumab can significantly reduce the number of pain crises in patients with sickle cell disease.
    • Status: As of now, Crizanlizumab is not generally available on the NHS in the UK. NICE has not yet fully approved it for widespread use in SCD, although it is available through certain clinical trials or special arrangements in select hospitals.
    • Cost: The cost of Crizanlizumab is approximately £75,000 to £100,000 per patient per year. The cost can vary depending on the dosage and individual circumstances.
  2. Voxelotor (Oxbryta) Voxelotor is a medication that works by increasing the oxygen-carrying capacity of sickle cells. It helps prevent the sickling of red blood cells by improving their ability to hold onto oxygen.
    • How it works: Voxelotor binds to hemoglobin to prevent it from sickling, thereby improving the blood flow and oxygen delivery to tissues. This can reduce the frequency of pain episodes and other complications.
    • Benefits: Voxelotor has been shown to increase hemoglobin levels and reduce symptoms associated with sickle cell disease.
    • Status: Like Crizanlizumab, Voxelotor is also not routinely available on the NHS at this time. Its approval for use in the UK is under consideration, and it may be available through clinical trials or on a case-by-case basis.
    • Cost: Voxelotor costs around £80,000 to £100,000 per year per patient.

For those with private health insurance, the coverage and access to such treatments would depend on the terms of the policy.

Subscribe to Collective Opportunities

Join our community and stay updated on the latest opportunities, events, and resources tailored just for you. Don’t miss out—subscribe today!

Share Story

Privacy Notice

To participate in our discussions, we require your agreement to the following terms and a valid email address.

By submitting your post, you agree to the collection of your email address, which will be used solely to notify you when your post is live and when other members respond to your post. Your email address will be kept private and will not be shared with third parties or used for any purpose other than notifications related to this forum.

Please review and agree to the terms below:

  1. Privacy and Data Use: Your email address will only be used for notifications about forum activity. We respect your privacy and are committed to protecting your information.
  2. Community Guidelines: By participating, you agree to maintain respectful and thoughtful dialogue. Any posts that violate these guidelines may be removed.
  3. Data Retention: Your responses and interactions will remain on the forum indefinitely unless you choose to remove them.

 

To continue, please enter your email and select “Agree” to confirm your acceptance of these terms.