Endometriosis Support and Information

Support groups 

Living with endometriosis can evoke feelings of frustration, sadness, or anxiety, particularly around relationships and fertility. Support groups, such as those offered by Endometriosis UK, and counseling services can help provide emotional support.

  1. Endometriosis UK
    • One of the leading organizations offering support groups across the UK. These are available both online and in-person.
    • Website: www.endometriosis-uk.org
    • Support Offered:
      • Local in-person groups in various cities.
      • Virtual support groups via Zoom.
      • Online forums and helplines for advice and emotional support.
  2. The Pelvic Pain Support Network (PPSN)
    • Focuses on chronic pelvic pain conditions, including endometriosis.
    • Website: www.pelvicpain.org.uk
    • Support Offered:
      • Online resources and educational materials.
      • Access to trained volunteers for peer support.
      • Facebook groups for community discussions.
  3. HealthUnlocked Endometriosis Community
    • A digital platform hosting an active community of individuals sharing experiences with endometriosis.
    • Website: HealthUnlocked Endometriosis UK
    • Support Offered:
      • Anonymous forums to discuss symptoms, treatments, and coping strategies.
      • Peer-to-peer support and advice.
  4. NHS-Run Support Groups
    • Some NHS trusts offer endometriosis-specific support groups. Check with your local hospital or GP for availability in your area.
  5. Facebook Support Groups
    • Endometriosis UK Support Group: A private group for sharing experiences and advice.
    • Endometriosis Awareness and Support: A global group with a strong UK presence.
  6. Black Women’s Endometriosis Support UK (Facebook Group)
  • A private group offering culturally specific advice and emotional support for Black women.

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